Wednesday, December 02, 2009
Monday, November 30, 2009
Monday, November 23, 2009
Monday, August 31, 2009
August - healthy!
Gerard has been such a healthy boy that I haven't had much time to post information. I've been busy keeping up with him! We've had swimming lessons and lots of fun in August, and then school started, and now I'm trying to figure out how to manage "our" time.
NICU Reunion was last Saturday, and we had such fun catching up with all of our nurses and friends...but didn't see many doctors. As soon as I can get organized, I'll post some more...but here's something to get the general idea. Gerard is weighing in around 26 lbs. and is walking, running, talking and doing funny toddler-type things. He's really fun and silly and smart! Some of his favorite words are car, train, read, book, and mamma (finally)! He likes to play by shutting his eyes and walking around laughing. He's a giggler... And he loves to eat now that he doesn't throw up after each meal. His very, very favorite word is "meat." Yes, you got it - he loves his meat!
NICU Reunion was last Saturday, and we had such fun catching up with all of our nurses and friends...but didn't see many doctors. As soon as I can get organized, I'll post some more...but here's something to get the general idea. Gerard is weighing in around 26 lbs. and is walking, running, talking and doing funny toddler-type things. He's really fun and silly and smart! Some of his favorite words are car, train, read, book, and mamma (finally)! He likes to play by shutting his eyes and walking around laughing. He's a giggler... And he loves to eat now that he doesn't throw up after each meal. His very, very favorite word is "meat." Yes, you got it - he loves his meat!
Sunday, August 09, 2009
Sunday, July 12, 2009
Sunday nap
First run!
Wednesday, July 08, 2009
Well, I had to mention this for posterity...
I just had to post these photos! Mike Daron, Rebecca "Becky Ory" Hernandez, Gerard Hernandez, and Paul Sylvest in Salt Lake City.
Gerard was very lucky to meet two of mommy's old Gramercy/Lutcher pals, Mike and Paul. We met up at Squatter's last weekend for lunch before the guys flew back to their respective TX and LA. It's always great to see old friends (because we so rarley do out West), so this was a rare treat! Mommy got her dose of coonass accent, and as you can see, Gerard is very, very sleepy. What's so neat about this is that Paul and I reconnected on FB through his older sister, who was my "main" babysitter, and well, as they say...the rest is history. The guys had a gig in Park City for the week, and I certainly would have held a grudge if they trucked all the way out here and we couldn't connect. Happy day! What's so funny about this photo is that we ALL have a lot MORE hair than we did back in the 80's. Thus this post...
We don't subscribe to TV in our house. Nope, no cable, no satellite, no junk shows, no commercials, no car races or sporting events...nothing but the odd "digital channel" non-violent cartoon station, which we don't watch unless it's "Thomas the Tugboat" or "Lambchop." Yes, of course, I let Gerard watch DVD's, so he's aware of "Sesame Street" and "Veggie Tales" and the like, but don't think TV increases the quality of our lives, and therefore, will not let it take over hours of his time. But back in the 80's, when I was hanging out with friends in high school, the music I listened to in the car and at home much of the time was Michael Jackson and early MTV music. In fact, I think I either cheoreographed or danced to at least six of Jackson's hits at the time, learned the Thriller dance by heart, and worked out and listened to the album every night for about a year. I even taught water aerobics to the music. So, his music was something I enjoyed. I need to mention Michael Jackson's death and funeral because it was a little slice of pop history, and I imagine that his effects on the music and entertainment industry will be felt for all years following. I was a fan, but I was not a fanatic. In fact, as a Rotary Scholar in Leeds, on one of my ambassadorial visits to a primary school, a kid asked me if I knew Michael Jackson. Well, I asked him if he knew Princess Diana or Sting. They all laughed, and as such, they got it.
I am grateful this week to not have TV. Not to get all soapboxy, but I'm so glad to not have to watch coverage about someone who is deceased and the family that now needs privacy, given much more media attention than people who are making a difference in our lives every single day. People who are friends and family who deserve our attention and love. People who matter to us.
On that note, I need to mention a special friend who is in need of prayers. My friend Nancy (here in Ogden) is dying of cancer. She was one of those people who made a positive impact on my life and the lives of thousands of high school students as well. She was an enthusiastic yoga student when I was first teaching, and always made me feel like I was doing something special, even though she was the one who was remarkable. She will be remembered as a quiet, beautiful soul. Gerard, you can ask me all about her later - We have been busy going by her house and dropping off meals for the family and visiting and making her smile and giving her "baby love" so she can feel better. Her gigantic dog makes Gerard so excited that he squeals with such delight, I'm worried we're going to hurt her! Big hugs to you, Nancy, and I'll be seeing you again someday... You will be missed, especially in the yoga studio. Jai Bagwhan...Namaste.
Tuesday, July 07, 2009
July - a new month and a new start!
We have been very busy staying on top of Gerard's pain and side-effects from medications. I'm juggling staying home and working mostly from home. Sorry to take such a long time between posts, but life is extremely busy...as you are all aware... and blogging takes a lot of time (believe it or not). In the time it takes you to read 2 minutes, it probably takes me an hour to write, then edit all the swear words out, then another hour to upload one image. Ah, technology.
Gerard is having a great day today, and a long nap...thus the generous post. Here are pics from the Fourth of July Parade last Saturday morning in Downtown North Ogden. It was overcast (thank goodness), and G had a terrific time, especially when the horses, firetrucks and police cars went blasting past us ...hmmm... He was a good little "jammer" when the little girl dance teams paraded through town - but I clapped and danced and carried on like a true So. LA girl, so lots of stuff got thrown our way (even from women)! (t-shirts, candy, plastic hats and American flags) - all rated G. So hooray and happy belated 4th! (even though we have a much bigger holiday coming up in UT - the 24th of July). Yes, google that one, why don't you - ! The 24th is coming, and it will be bigger and badder than ever!
Because we live across the street from the park that shoots the fireworks, I was able to capture a few pics at the dining room table when we finally got to eat around 10:00 PM. All that activity had G too wired to sleep.
Tuesday, June 30, 2009
Saturday, June 27, 2009
G update
No cellular service in this hospital. No e-mail except the middle of the night (3 am) and no f-booking works here as far as messages. I can text, that's about it. So if you haven't heard from me, that's why.
Things are very rough. Not good. G is still in the hospital and is not doing well. Lots of vomiting due to medication issues. Right when it looks like he's turning a corner, he vomits again and we start all over. Having trouble managing his pain as well.
This is not my favorite hospital. It's a sad place to be. Lots of very, very sick children and lots of "code blue" announcements all day. It's really, really difficult. I actually would prefer to be at home. In fact, for the first time in my life, I almost disconnected everything and fled the other night. Took us 48 hours to get him into a room. Not acceptable.
I've tried posting now five times. If this doesn't work, it's not getting posted. Sorry. Exhausted. I'll try again tomorrow. Looks like we'll be here until Sunday.
Things are very rough. Not good. G is still in the hospital and is not doing well. Lots of vomiting due to medication issues. Right when it looks like he's turning a corner, he vomits again and we start all over. Having trouble managing his pain as well.
This is not my favorite hospital. It's a sad place to be. Lots of very, very sick children and lots of "code blue" announcements all day. It's really, really difficult. I actually would prefer to be at home. In fact, for the first time in my life, I almost disconnected everything and fled the other night. Took us 48 hours to get him into a room. Not acceptable.
I've tried posting now five times. If this doesn't work, it's not getting posted. Sorry. Exhausted. I'll try again tomorrow. Looks like we'll be here until Sunday.
Surgery
Sorry this has to be brief, but it's 1:15 a.m. on Friday night and I haven't slept much since Tuesday.
G's surgeries went well, but they had trouble managing his pain. Now they are not listening to my recommendations about medications for infection. G's vomiting a lot! He can't handle all the meds on his empty stomach. Hasn't eaten or drank - and when he does (like a bird) he throws it all up.
Rough times. It will pass, but the post-op stay was 48 hours and unacceptable. I had to call corporate to get something done about it. After that, we got a room in 20 minutes. Frustrating.
If the doctor doesn't listen to me tomorrow, I'm going to have to do something drastic, and will just pay the price later. Poor G. He's in a state of big swings of up and down - and he's exhausted. Slept most of the day hooked up to an i.v. Had to give him a strong narcotic tonight.
I'm going to sleep now. The hospital blocks internet connections for longer than 5-10 minutes and I'm about to get kicked off. More later.
I'm having better luck with facebook - so if you want information, you'll have to sign on to see photos there until we get home. And then...I'll be busy being a nurse again. Sorry everyone!
FYI - My Mom had a seizure yesterday and she's on anti-seizure medication. Poor Mamma. Please pray for her.
Tuesday, June 23, 2009
Wishing G luck
The night before the big surgeries. June 23, 2009
I haven't ranted in a while, so here's some dribble.
Tomorrow Gerard will be having surgery at 7:30 a.m. in Salt Lake. At least, that's the plan.
That means leaving Ogden at 5:00 a.m in time for a 6:00 a.m. check-in at Primary's. Which means I have to wake up at 4:00 a.m. to get the car packed and everyone ready to go. This will not be fun. Just ask my Dad, who knows what a bear I can be in the mornings. Well...G has inherited that gene, and it's a good thing, because that means we won't have to talk to one another.
G will not be able to have anything other than clear liquids to drink until 4:30 a.m and after that...nothing. Should be interesting for me when he gets thirsty. Normally, he doesn't want anything until around 8 am anyway, so we'll see... G is a good sleeper and crashed hard tonight around 9. I had a busy evening getting him ready, packed, bathed and playing hard to be sure he'd sleep. I did well. Now I can't sleep (nerves). Our neighborhood had it's annual summer solstice party, which we nearly missed. We arrived in time for the breakdown of everything tasty at 8:00. We didn't get home until after 6:30, and in the process stood up a friend for the first time ever! I'm a scatter-brain this week. Sorry, friend. You know who you are and I'm sure you understand. I'm sorry...we'll make it up to you.
For all of you out there wondering, there will be 4 procedures done to Gerard tomorrow. 1. revised circumsision (I don't want to talk about why, but I'm sure you get the gist. Shouldn't have been done in the NICU in the first place). 2. tonsilictomy. 3. adinoidectomy. 4. laryngeal exploration. Please don't ask me to explain any of these later on.
Rationally, I know that it is a good thing to have these things done when kids are young. I know that thousands of children have these surgeries performed even as a matter of routine. It's Gerard's blog for when he's older to know what happened with me and him, so I can say what I want here, and I don't want to hear any bull---- about my feelings and how this is going to be so much better for him, bla bla bla. People seem to forget that Gerard is 18 months old. He'll be 15 months adjusted when this takes place, not 2 or 3 or 4 or 5 years old. He's a "baby" for all practical purposes. This is some serious stuff going on. So serious that our local hospitals will not do it. So I can say that I'm concerned. I'm worried, and I'm so sorry that he has to deal with this while he's so little and fragile, as great as he looks. He looks so good and healthy right now that I want to squeeze him all day and play and read to him and finally, "enjoy" him. We've been through the rough stuff. It's all been caregiving up until this point. Forget the mom and dad bonding... We've almost lost him twice now...so I guess I should be ready for another go. Bring it on! What I'd like to say is that I'm very sensitive right now and I'm sick and tired of people saying heartless and ridiculous things to me about what I should or should not be doing. I have made many, many sacrifices so that he can be strong and healthy. I have continued to work through all of this. I have stayed home from work when he's been sick to nurse him. I have taken him out of daycare at the demands of my doctors. I am fortunate that I work at a place that is allowing me to do this for a limited time. But this has been and is a hard, hard decision. It's been reduced to this, or chronic illness for years to come, and I already personally know what that's like. I don't want that for him. He's already had tubes put in his ears, a botched up circumcision and has chronic lung disease on top of all the rest. So let's hope and pray these procedures work and that it doesn't cause more damage. I've already got enough Catholic guilt about all this to last the rest of my life.
As for me and my personal health, I'm feeling much better, although I am quite fatigued. My biopsy results came in "normal," and my head CT looks tons better (no surgery planned)! Hormone therapy is no fun, but I should have a clean bill of health by the end of July. One more ultrasound in a couple of weeks will let us know if I need to have a different treatment. It's been a rough, rough year for the little guy and me. Pressing on...
If you haven't heard from me, it's just been a really tight schedule lately. I'm trying to hang on to what I can with work, and at the same time trying to manage the house and sick baby. I've let my yoga practice completely go and haven't been to the gym in yonks. I did manage to find someone to sit with Gerard for a few days a week which allows me to continue to work in an intermittent capacity. It's all a challenge. The benefit to all this juggling is that my creative skills are popping up in completely new ways and I'm getting some wonderful design work in a spare 30 minutes or so a few times a week.
To all my girlfreinds - thank you. You are all jewels and angels and I couldn't have made it this far without ya'll. God bless. Good night.
I haven't ranted in a while, so here's some dribble.
Tomorrow Gerard will be having surgery at 7:30 a.m. in Salt Lake. At least, that's the plan.
That means leaving Ogden at 5:00 a.m in time for a 6:00 a.m. check-in at Primary's. Which means I have to wake up at 4:00 a.m. to get the car packed and everyone ready to go. This will not be fun. Just ask my Dad, who knows what a bear I can be in the mornings. Well...G has inherited that gene, and it's a good thing, because that means we won't have to talk to one another.
G will not be able to have anything other than clear liquids to drink until 4:30 a.m and after that...nothing. Should be interesting for me when he gets thirsty. Normally, he doesn't want anything until around 8 am anyway, so we'll see... G is a good sleeper and crashed hard tonight around 9. I had a busy evening getting him ready, packed, bathed and playing hard to be sure he'd sleep. I did well. Now I can't sleep (nerves). Our neighborhood had it's annual summer solstice party, which we nearly missed. We arrived in time for the breakdown of everything tasty at 8:00. We didn't get home until after 6:30, and in the process stood up a friend for the first time ever! I'm a scatter-brain this week. Sorry, friend. You know who you are and I'm sure you understand. I'm sorry...we'll make it up to you.
For all of you out there wondering, there will be 4 procedures done to Gerard tomorrow. 1. revised circumsision (I don't want to talk about why, but I'm sure you get the gist. Shouldn't have been done in the NICU in the first place). 2. tonsilictomy. 3. adinoidectomy. 4. laryngeal exploration. Please don't ask me to explain any of these later on.
Rationally, I know that it is a good thing to have these things done when kids are young. I know that thousands of children have these surgeries performed even as a matter of routine. It's Gerard's blog for when he's older to know what happened with me and him, so I can say what I want here, and I don't want to hear any bull---- about my feelings and how this is going to be so much better for him, bla bla bla. People seem to forget that Gerard is 18 months old. He'll be 15 months adjusted when this takes place, not 2 or 3 or 4 or 5 years old. He's a "baby" for all practical purposes. This is some serious stuff going on. So serious that our local hospitals will not do it. So I can say that I'm concerned. I'm worried, and I'm so sorry that he has to deal with this while he's so little and fragile, as great as he looks. He looks so good and healthy right now that I want to squeeze him all day and play and read to him and finally, "enjoy" him. We've been through the rough stuff. It's all been caregiving up until this point. Forget the mom and dad bonding... We've almost lost him twice now...so I guess I should be ready for another go. Bring it on! What I'd like to say is that I'm very sensitive right now and I'm sick and tired of people saying heartless and ridiculous things to me about what I should or should not be doing. I have made many, many sacrifices so that he can be strong and healthy. I have continued to work through all of this. I have stayed home from work when he's been sick to nurse him. I have taken him out of daycare at the demands of my doctors. I am fortunate that I work at a place that is allowing me to do this for a limited time. But this has been and is a hard, hard decision. It's been reduced to this, or chronic illness for years to come, and I already personally know what that's like. I don't want that for him. He's already had tubes put in his ears, a botched up circumcision and has chronic lung disease on top of all the rest. So let's hope and pray these procedures work and that it doesn't cause more damage. I've already got enough Catholic guilt about all this to last the rest of my life.
As for me and my personal health, I'm feeling much better, although I am quite fatigued. My biopsy results came in "normal," and my head CT looks tons better (no surgery planned)! Hormone therapy is no fun, but I should have a clean bill of health by the end of July. One more ultrasound in a couple of weeks will let us know if I need to have a different treatment. It's been a rough, rough year for the little guy and me. Pressing on...
If you haven't heard from me, it's just been a really tight schedule lately. I'm trying to hang on to what I can with work, and at the same time trying to manage the house and sick baby. I've let my yoga practice completely go and haven't been to the gym in yonks. I did manage to find someone to sit with Gerard for a few days a week which allows me to continue to work in an intermittent capacity. It's all a challenge. The benefit to all this juggling is that my creative skills are popping up in completely new ways and I'm getting some wonderful design work in a spare 30 minutes or so a few times a week.
To all my girlfreinds - thank you. You are all jewels and angels and I couldn't have made it this far without ya'll. God bless. Good night.
Monday, June 22, 2009
Check out my digs...
Uncle Scott and Auntie Daphne
Running the big room
My very first Tee from Disney
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